I finally feel well enough to function. I had really bad headaches in my temple area and the back of my head the past 6 days. It got to the point I had to take Naproxen every 4 hours instead of 6. Tylenol didn't help either. I thought it was a sinus infection which I never had. My primary doctor said my headaches would be on my forehead when I saw him this last Friday. He told me to talk to my Lupus doctor about this new symptom.
The headaches stopped on Monday so by Tuesday a.m. I met with my new Rheaume doctor. I really like him. I had wanted him back when I was first diagnosed back in Sept 2009 but he was out ill himself and was not taking any new patients. So here we are in March of 2011 and he is my Doctor now. Being my 3rd Rheaume doctor, it is a big difference in the extra care I feel.
(I apologize, my vocabulary is just not the same, I can't think of the right words to use. I really think it is because of the bad headaches I just had)
I'll call my new Rheame Dr. J. He told me I had Sjogren's disease and asked me if I knew that. I told him in the past 1 1/2 years the other doctors never told me and I didn't know what that was. So now all the past symptoms made sense to me. The dry eyes being the worst. I was using Refresh eye drops to soothe my dry eyes. Dr. J told me there are other lubricants I can get that are longer lasting. Unfortunately I left the paper at his office so I'll have to call and get the information again. I wanted to share this to help others having this symptom.
Dr. J said I could have some type of nerve damage somewhere that is causing my right side numbness. I told him my right leg and right hand are numb and fall asleep on me causing me to move around a lot at night and during the day also. He thinks also by having the headaches he wants to consider giving me an MRI on my head to make sure there is nothing wrong with my brain. I read about symptoms with Lupus and the Central Nervous System and how it affects us but I don't know what it is yet.
Ever since my daughter was not diagnosed having Juvenile Diabetes by her Primary doctor I'm always concerned that when our body feels different, it's trying to tell us something is not right. Unless a test can tell a doctor what is wrong, I won't stop trying to find out.
All my life I have gone through these situations with doctors. I knew that when my daughter was late at birth I told my OB/GYN that my stomach felt hard and there was a lot of pressure on my ribs, like it was her head pushing up on it. He said babies move a lot the last few days. She was born breech. When I told my doctor I felt super hyper, rapid heartbeat, and lost excessive weight all of a sudden, I had Hyperthyroidism. When I went to my doctor few years later I told him I had gained weight, felt cold all the time, I had Hypothyroidism. When I got diagnosed with Lupus, I had nausea/dizziness for a week, shortness of breath climbing one flight of stairs (I used to bikeride for 7- 9 miles), and I felt sudden joint pain on my legs/arms keeping me up at night.
So my past experiences has already taught me and instilled in my brain, something is up. I have never had migraine headaches in my past and the sudden numbness on my right leg and right hand is something new. The sharp pains on my chest also is not the same as before by my heart. So I am concerned. Other new symptoms are ringing in my ears and loss of hearing. I also have cognitive dysfunction that is getting worse. I did a test that asked me to draw a clock and I had my son tell me different times to put on the clock. I got all 3 wrong. I couldn't remember how the minutes and hours worked on a clock. The next test was for my son to tell me 3 words that are nouns and 5 minutes later to ask me what they were. I could only remember the easy ones that I tied to something familiar but the others, I could not remember at all.
It's late now so I'm heading to bed. I wanted to catch up on what has been going on. I still plan to move to Texas in Mid-July and I want to still try to go to Nursing School.
Dr. J said he would call me tomorrow to let me know what he wants to do next.
