Saturday, March 21, 2020

Lupus , Hydrochloroxine and Possible Coronavirus


March 20, 2020 Friday

I have  my Hydrochloroxine for lupus but  my antibiotics will run out and I'm afraid my lungs will get weak when I run out.  I just took a 2nd  Hydrochloroxine pill to see if my body is receptive.  I don't know what the 2nd pill side effects will be.  I feel  God is keeping the virus at bay.   I can feel it trying to attack my lungs. I feel the pain in my chest. I'm taking Tylenol for that. I'm  afraid to take Naproxen .    I used to use my nebulizer machine has albuterol like an asthma inhaler but it has steroids when I used it the other day before going to the ER . It felt like my lungs were worse.   I am stable right now I can't talk anymore my lungs feel weak. But by some miracle I am breathing on my own. I squeezed in talking to my Rob and Tina today via FaceTime I saw my Grandbabies it made me feel happy and sad.  I wanted for now to be to able to see them to talk to them.   I spoke to my sister and my Mom for just a few seconds on the phone. I am out of breathe now so I am going to not be able to talk to my kids for awhile. I'm not talking to my husband Doug we are communicating by text even in our 493 square foot home.  I am thankful for what we have even if it small.  I have  all I need.  When I say I'm fine I am because I can breathe.  I can't move around too much or do anything.  No laundry no cooking nothing.  I'm thankful for my husband.  He's taking care of me.   For now I took Mucinex and am taking  my 5th antibiotic soon.  I took the 2nd Hydrochloroxine just now I don't know the side effects. I've taken two years ago and got down to one 5 years ago. My doctor told me it would affect my kidneys if taken long term.  So far he said I had been his best lupus miracle patient.   I told him I thank God for that.  Well I will keep you posted on whomever wants to know how I'm doing.  Life has slowed down to a complete halt.   It feels like the Twilight Zone movie.  Just do you all know I'm not watching the news, I'm not stressed, I'm not worried.  I don't have anxiety.  I am at peace. I am close to God and I have no fear.  I am positive and believe we can get through this with God's love.   Sending love and prayers to all❤️🙏

I have Lupus I’ve had it since 2009 - I am still on trial here at home caring for myself pending my test results- I take one pill of Hydroxychloroquine a day I used to take two.  I’m thinking maybe I’m not getting the Coronavirus because I take Plaquenil and/or maybe I do have it pending my test results.  I was exposed to my 6 year old granddaughter on Sunday she suddenly got a fever and cough. She had no illness all day until the evening.  She had fever for two days and is now feeling better. I was feeling well until Tuesday all of a sudden I started the dry cough and shortness of breath.  As of today I have taken my antibiotics the ER gave me which protects from malaria as well, Doxycycline.  I have taken 4 out of 14 pills now. I have used Mucinex, then Theraflu. This morning I could not talk I could not catch my breath.  I can now breathe and talk. I am not saying I’m cured and I understand my infection whatever I have; my Influenza A and B test came back negative, the nurse was hoping it was positive to rule out Coronavirus,  comes and goes as I feel better then I feel bad again when meds kick in.  I feel my humidifier to be helping as well.   Please don’t just go out and take  Hydroxychloroquine if someone gives it to you. It is risky you will feel really sick.  it took a month to get into my system to start helping my Lupus. It’s not a pill you just take like Tylenol.  If doctors can either figure a smaller dose, possibly in a liquid form, that can be given as symptoms start. It can help your immune system along with the antibiotics and the Mucinex and Theraflu all mixed and spread out can help. I haven’t ate today I’m not hungry but I’m also I’m letting all these meds absorb in my body full force at 100% and do it’s job without food breakdown getting in the way. I will keep you posted love and prayers for all and God Bless all of our hard working doctors, nurses, hospital,  military and Deputy Sheriff and police force and gas stations, grocery store, and food places open for pickup. A huge thank you to all of you for your sacrifices to help me and others! ❤️🙏

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I’m calling this virus the “Silent Killer”

Whether or not I have the Coronavirus, I won’t know my test results until next week, even if I’m headed towards pneumonia the feeling is the same except this virus is 10 times worse if I get it. Once your lungs are infected there is no cure. The only reason we need to take this seriously is because people who are older or have low immune systems are the ones at risk and can die from this. My Lupus causes my immune system to attack my healthy blood cells the ones that provide my oxygen to breathe. I don’t want my lungs infected because it’s downhill from there. I’ve had bronchitis, walking pneumonia, I can tell this virus is way worse.  I’m saying it’s the silent killer because you can look fine on the outside but your lungs are getting infected on the inside. I don’t get mucous, no sneezing, it’s a dry cough my throat feels dry. I feel pain in my chest. I can tell my lungs are working harder.  I take short gasps of air, they call it shortness of breathe.  I can’t talk to anyone I love, my kids, grandkids, family, friends because I run out of breath. I am hopeful this antibiotics, Doxycycline, works I’m on my 3rd pill out of 14, I’m drinking lots of fluids, Gatorade especially, and I’m taking Theraflu.  Last night got a little harder to breathe by some miracle my daughter texted me to try Mucinex DM even though I don’t have any mucous it helped me breathe.  I woke up this morning with the heavy chest and took Mucinex again I am not sure it works on its own so I’m going to take my next antibiotic pill now.  I will keep you posted for anyone who wants to know how I’m doing.  I’m crying now, I miss my life, I miss my kids, my grandkids, my family and friends. I miss bike riding, being outside. I even miss my job. I’m not worried about my bills or food or toilet paper. I just want my life back and I want to live. I believe in God the ones that know me know I love and trust in God. Pray together they find a cure. I heard they think Hydrochloroxine  can help I take that right now for my Lupus along with this antibiotic maybe this can be what helps keep this virus from attacking my lungs. This is all for now I will keep you posted. Sending love and prayers to all ❤️🙏



March 18,2020 Tuesday

Went to ER last night at Kaiser In Irvine they had me sit outside on a chair apart from others, it was freakin cold.  One I believe nurse was kind to bring us all out a hospital blanket.  Urgent Care had turned me away earlier without an appointment.  I did get into hospital and I know they’re all doing the best they can as this is all new but I don’t think they’re as prepared if more people start coming in with symptoms.  The security guard was the one asking me what my symptoms were.  I won’t get my test results until 5 days don’t really know why.  My influenza test was negative with a quick result.  Antibiotics seem to be working and that’s only because I told doctor I have to have them I wasn’t leaving without them. I have Lupus and my lungs are already shot.  I’m doing okay right now just giving you all heads up if you have to go in. Prayers and love to all of you ❤️🙏